Find out what your 2014 Candidates will do in Congress to support medical research
With less than a month remaining before Election Day, now is the time to get involved in the Ask Your Candidates! initiative. Through this effort, voters can ask congressional candidates to share their views on accelerating medical progress in America. Every voice makes a difference as we look to find treatments and cures for deadly and disabling diseases like cancer and Alzheimer’s, and other threats like Ebola.
There are two easy ways to participate:
- Send an email to your candidates using the pre-drafted message, or a message of your own, and by filling in your contact information and clicking “Send Message.”
- Create awareness about the importance of medical research by taking a selfie. Just follow these steps: 1) Personalize an AYC! sign (or create your own sign), sharing why you support medical progress; and 2) Post your signs on Facebook or Twitter, using the hashtag #AYCresearch, or send it to us at firstname.lastname@example.org. If you’d like to see examples of selfies, see the AYC! selfies Facebook album.
Dear Research Advocate:
The accomplishments of the recently announced 2014 Nobel laureates in the fields of physiology or medicine, and chemistry are breath-taking. Whether identifying the mechanisms by which the mind comprehends space and place, or enhancing ability to observe how diseases develop, these scientists have, over time, enabled progress that couldn’t have been determined by fiat. Science serves us all via an iterative discovery process, which is why policymakers are skating on thin ice when they censor research that doesn’t promise results that serve a date or purpose certain. Centuries ago, European rulers launched many ventures before eventually discovering the New World — not every journey was a success, nor was everything discovered anticipated in advance. It is ever thus as we continue to explore new worlds, since even as discoveries open new vistas, plenty of surprises occur. Indeed, some new worlds are not as “new” as first thought — to wit, October includes a holiday known to some as Columbus Day and to others as Indigenous Peoples Day. Seeing things in a new light doesn’t mean we should shut down discovery because some aspects of it make us uneasy or call our values into question.
Ebola has called our values into question, to be sure. Do we need a shared sense of existential threat like Ebola to arrive on our doorstep — a “Sputnik moment,” if you will — before Americans mobilize to demand more support for U.S. science? Although there is every reason to believe that the world can contain Ebola — we have contained all previous Ebola outbreaks — there is no denying that we are not as well positioned as we should be to face down this challenge, due to years of under-investment in research and public health, including research on diseases that seem rare and/or remote. My op-ed in Roll Call this week drives home this point, calling on decision-makers to act for NIH, CDC, and, fundamentally, for forward-thinking instead of reactive policies. Continue reading →
Statement by Research!America President and CEO Mary Woolley on Nobel Prize in Physiology or Medicine
Research!America congratulates this year’s Nobel Prize winners in physiology or medicine, Professor John O’Keefe of the University College London, and May-Britt and Edvard Moser, both of the Norwegian University of Science and Technology. Their discoveries of cells that provide the basis for how the brain maps surrounding space, allowing us to navigate complex environments, may lead to a better understanding of diseases such as Alzheimer’s, which afflicts 44 million people worldwide. O’Keefe, who as a postdoctoral fellow was supported by funding from the National Institutes of Health, made the first discovery of the brain’s “inner GPS” in 1971. The Mosers continued to develop his research, discovering another key component of the brain’s mapping system which shed more light on our ability to navigate. Continue reading →
Research!America To Honor Leaders in Medical and Health Research Advocacy
Robin Roberts, Michael Milken, Dr. Kenneth Olden, David Van Andel, Dr. George Vande Woude and the Society for Neuroscience to Receive 2015 Research!America Advocacy Awards
ALEXANDRIA, Va.—September 29, 2014—Research!America’s 19th annual Advocacy Awards will honor distinguished research advocates who are trailblazers in advancing medical progress to improve the health and economic security of our nation. The event will take place on Wednesday, March 11, 2015, at the Andrew W. Mellon Auditorium in Washington, DC.
The 2015 Advocacy Award winners are ABC’s “Good Morning America” anchor Robin Roberts; Michael Milken, founder of the Milken Institute and FasterCures; Dr. Kenneth Olden, Director, National Center for Environmental Assessment, U.S. EPA; David Van Andel, Chairman and CEO, and Dr. George Vande Woude, Founding Scientific Director, Van Andel Research Institute; and the Society for Neuroscience (SfN).
“These exceptional leaders have advanced scientific discovery and innovation through their determination to improve the health of individuals worldwide,” said Mary Woolley, president and CEO of Research!America. “Their work has paved the way for others who are committed to ensuring that we save lives and sustain our nation’s global competitiveness with robust support for research.” Continue reading →
By Israel Rocha, CEO, Doctors Hospital at Renaissance
September 15 marks the beginning of Hispanic Heritage Month, a time to pay tribute to the generations of Hispanics who have enriched America’s history. It’s also an important time to consider how this community can be further empowered to make important contributions, particularly in the future of health care.
Research demonstrates that certain diseases disproportionately impact the Hispanic community, including diabetes, liver cancer, cervical cancer and HIV/AIDS. Clinical trials help researchers find better ways to diagnose, prevent and treat these diseases and others. However, Hispanics are significantly underrepresented in clinical trials. Despite representing 16 percent of the U.S. population, Hispanics comprise only 1 percent of clinical trial participants.
Given this historic underrepresentation, there is tremendous opportunity to boost clinical trial participation within diverse patient populations. According to a July 2013 study by Research!America:
- More than 40 percent of Hispanics greatly admire clinical trial participants.
- More than 2/3 of Hispanics would be willing to share health information to help researchers find better ways to prevent and treat disease.
- Nearly half of the Hispanics polled rate a physician’s recommendation to participate in a clinical trial as very important.
Stagnant funding could threaten progress in eye research
America’s minority populations are united in the view that not only is eye and vision research very important and needs to be a national priority, but many feel that current federal funding ($2.10 per person, per year) is not enough and should be increased. This may stem from the evidence that most minority populations recognize to some degree that individuals have different risks of eye disease depending on their ethnic heritage.
And while these Americans rate losing their eyesight as having the greatest impact on their daily life and having a significant impact on their independence, productivity and overall quality of life, 50 percent of Americans who suffer from an eye-related disease are not aware of it.
These statics and more were the topic of discussion at a press event in Washington, D.C., today, where members of the media and leaders in the eye and vision research community gathered to interact with a panel of experts and weigh in on the topic of The Public’s Attitudes about the Health and Economic Impact of Vision Loss and Eye Disease. Continue reading →