This guest post comes from Edward Grandi, Executive Director of the American Sleep Apnea Association.
The American Sleep Apnea Association, founded in 1990, is the only national nonprofit patient advocacy organization dedicated to educating the public about sleep apnea and supporting patients in treatment.
We are pleased to be a member of Research!America as it gives us an opportunity to help carry forward the message about the importance of sleep in medical research and to join with other organizations to promote the work of agencies like NIH, CDC and AHRQ to members of Congress.
The field of sleep medicine is still relatively young and research into the fundamental causes of sleep disorders is just beginning. The association’s research interests span from basic science into why and how we sleep to understanding clinical applications to improve sleep by correcting disorders.
Like all health-related organizations we are concerned that the legislative branch of the federal government’s shortsightedness will slow down or potentially halt the forward progress of research into the many challenging health issues confronting us. Our hope is that through efforts of grassroots groups like ours we can bring the stories of improved health to the policymakers to stem the tide.
The association has joined with others in letter writing campaigns to encourage Congress not to reduce funding for medical research. Of particular concern is a small program within the CDC that addresses the issue of sleep.
The ASAA communicates with it members and friends through various media. The association’s principle website is www.sleepapnea.org – there, those looking for information on sleep and sleep apnea can find what they need. We host a patient to patient forum at www.apneasupport.org, patient questions are answered by those living with the condition.
We also use social media like Facebook www.facebook.com/sleepapneaassn as well to communicate new information that would benefit those at risk of sleep apnea or looking for alternatives.
We look forward to working closely with Research!America to support and promote medical research.