Stagnant funding could threaten progress in eye research
America’s minority populations are united in the view that not only is eye and vision research very important and needs to be a national priority, but many feel that current federal funding ($2.10 per person, per year) is not enough and should be increased. This may stem from the evidence that most minority populations recognize to some degree that individuals have different risks of eye disease depending on their ethnic heritage.
And while these Americans rate losing their eyesight as having the greatest impact on their daily life and having a significant impact on their independence, productivity and overall quality of life, 50 percent of Americans who suffer from an eye-related disease are not aware of it.
These statics and more were the topic of discussion at a press event in Washington, D.C., today, where members of the media and leaders in the eye and vision research community gathered to interact with a panel of experts and weigh in on the topic of The Public’s Attitudes about the Health and Economic Impact of Vision Loss and Eye Disease. Continue reading →
Research!America and the Pancreatic Cancer Action Network Host Panel Discussion – “A World Free from Cancers: Probable, Possible, or Preposterous?”
Leading Experts Focus on the Challenges and Opportunities Affecting the Fight Against Cancer
ALEXANDRIA, Va. – February 27, 2014 – A panel of leading health, economics and policy experts today discussed the prospects for a future where cancers are rendered manageable or even eradicated and the variables affecting progress toward that goal so that cancer patients are able to lead normal, productive lives – and thus be “free from” their cancers. The forum was hosted by Research!America and the Pancreatic Cancer Action Network. The event, titled, “A World Free from Cancers: Probable, Possible, or Preposterous?” was held at the New York Academy of Sciences.
Medical innovation has contributed to the economic success of the U.S. over the last 50 years and it offers enormous potential to make a meaningful difference in the quality and length of our lives in the next 50 years. Of all the critical trends that will create a prosperous future, the panelists believe that medical innovation will be the most important. In order to achieve a culture of change where science and medicine will be part of the solution, all stakeholders must stand up and advocate for pro-patient and pro-innovation policies and laws. By supporting a positive regulatory and legislative environment and working toward innovative solutions for complex health care challenges, policy makers can help combat devastating diseases like cancers.
“While medical innovation has driven extraordinary progress against cancer in the U.S. and peer nations, we know that globally, cancer cases and death rates are rising. And even in the U.S., the incidence of some cancers, including pancreatic cancer, is rising,” said Mary Woolley, president and CEO, Research!America. “We need to work together to address these alarming trends, and commit to overcoming the barriers to achieving a world free from cancers. Ensuring that U.S. policy makers sustain a policy environment conducive to rapid-pace medical innovation is crucial.”
The panel addressed the role of medical innovation, not only in the fight against cancer, but as a major force in our nation’s economic progress. Among the technological advances of the 21st century, medical innovation has been the biggest factor in improving the lives of patients, benefiting the health care system and improving prosperity. Over the past 50 years, medical innovation has been the source of more than half of all economic growth in the United States.
The panel, moderated by Fox News Channel’s Jim Pinkerton, featured several leading figures in the cancer and health care community, including:
- Clifton Leaf, journalist and author, “The Truth in Small Doses: Why We’re Losing the War on Cancer-and How to Win It”
- Julie Fleshman, president and CEO, Pancreatic Cancer Action Network
- Laurie MacCaskill, seven-year pancreatic cancer survivor and chair, national Board of Directors, Pancreatic Cancer Action Network
- Amy Abernethy, MD, PhD, director, Duke Center for Learning Health Care
- Robert J. Hariri, MD, PhD, chairman, founder and chief scientific officer, Celgene Cellular Therapeutics
- Scott Gottlieb, MD, resident fellow, American Enterprise Institute
- Frank Lichtenberg, PhD, Courtney C. Brown Professor of Business, Columbia University
“Although medical innovation has played a key role in the fight against cancer and improving the overall cancer survival rate, much work lies ahead especially for deadly cancers such as pancreatic cancer where the five-year survival rate is just 6%,” said Julie Fleshman, president and CEO, Pancreatic Cancer Action Network. “In order to move towards a world free from cancers, the cancer infrastructure has to continue to keep up with the advances in science and our nation needs to make medical research a priority.”
The panel discussed the benefits of past breakthroughs for some types of cancer: there have been an estimated 50 million life-years saved and $4.9 trillion added in economic value due to innovative cancer treatments since 1990. However, further success in reducing the devastating impacts of cancers and accelerating medical innovation is dependent on developing effective collaborative solutions from an “ecosystem of innovation” – bringing together scientists, patients, health care providers, private-sector medical innovators, academia, payers and policy makers – to find solutions that will save lives from all types of cancers.
“We have made great progress since 1971, when President Nixon declared the war on cancer, in terms of understanding the epidemiology of the disease, improving diagnoses, discovering new treatment paradigms and novel therapeutic approaches to better manage cancers,” said Robert Hariri, MD, PhD, chairman, founder and chief scientific officer, Celgene Cellular Therapeutics. “But the progress we’ve made is not enough. We need to continue the momentum we have started and work together to change the course of human health for patients, health care, our economy and future generations.”
Research!America is the nation’s largest nonprofit public education and advocacy alliance working to make research to improve health a higher national priority. Founded in 1989, Research!America is supported by member organizations representing 125 million Americans. Visit www.researchamerica.org.
About the Pancreatic Cancer Action Network
The Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization is leading the way to change the survival for people diagnosed with this devastating disease through a bold initiative — The Vision of Progress: Double Survival for Pancreatic Cancer Survival by 2020. Together, we can know, fight and end pancreatic cancer by intensifying our efforts to heighten awareness, raise funds for comprehensive private research, and advocate for dedicated federal research to advance early diagnostics, better treatments and increase chances of survival. To learn more, visit www.pancan.org.
It’s Breast Cancer Awareness Month! Although many great strides in new treatments and therapies for breast cancer have been made, patients and their families are still waiting desperately for a cure. According to the American Cancer Society, breast cancer is the most common cancer among American women, except for skin cancers. About 1 in 8 women in the U.S. will develop invasive breast cancer during their lifetime.
This month, organizations will raise awareness and funding for breast cancer, and it’s important that we continue advocating to policy makers, media and the public about the importance of funding research at the level of scientific opportunity. Throughout October, please visit Research!America members American Cancer Society and American Association for Cancer Research to learn more about preventative care, new research and ways you can help make a difference in the fight against cancer.
Now is the time to tell Congress that we need #curesnotcuts; we need access to quality breast cancer screenings, diagnostic services and treatment, and care for all women. Speak up for breast cancer research!
Major Study Finds That Overall Population Health in U.S. Has Improved, But Has Not Kept Pace With Other Wealthy Nations
Americans are living longer lives but are spending more years afflicted with major illnesses such as Alzheimer’s disease, kidney disease, and mental and behavioral disorders, according to a study published online in the Journal of American Medical Association. Researchers show that the overall population health improved in the U.S. in the last few decades, however, illness and chronic disability now account for nearly half of the country’s health burden.
The objective of the study was to measure the burden of diseases, injuries and leading risk factors in the U.S. from 1990 to 2010 and to compare these measurements with the 34 countries in the Organisation for Economic Co-operation and Development (OECD). The researchers found that U.S. life expectancy for both sexes increased from 75.2 years in 1990 to 78.2 years in 2010; during the same period, healthy life expectancy increased from 65.8 years to 68.1 years. During this time period, improvements in population health in the U.S. did not keep pace with other wealthy nations. The authors note that the U.S. spends the most per capita on health care across all countries yet lags behind other high-income countries for life expectancy and many other health outcome measures.
In a recent national public opinion poll, two-thirds of Americans (66%) say that their quality of life has been improved by medical research and that the cost of health care is the most critical health issue in America today. We must continue to urge policy makers about the importance of funding medical research if we want to live healthier – not just longer – lives.
The full study is available online: http://jama.jamanetwork.com/article.aspx?articleid=1710486
Editor’s Note: This study is supported in part by the Intramural Program of the National Institutes of Health, the National Institute of Environmental Health Sciences, and in part by the Bill and Melinda Gates Foundation.
Men’s Health Month increases the awareness of preventable health problems and encourages early detection and treatment of disease among males. According to MensHealthMonth.org, this is a time for health care providers, policy makers, the media, and individuals to encourage men to seek regular medical advice and early treatment for disease and injury. Continue reading →
The United Kingdom recently announced a plan that will capitalize on its role as President of the G8 to promote an international cooperation to stop dementia.
This announcement sparks the beginning of increased international collaboration among world governments, industry and non-governmental organizations. Representatives of these diverse entities will gather at an upcoming dementia summit in London, scheduled for September. The global impact of dementia and Alzheimer’s is undeniable—over 35.6 million people worldwide battle with dementia. With the aging global population, this figure is predicted to exceed 110 million people by 2050. Continue reading →
President Barack Obama unveiled the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative on Tuesday. Described in a White House press release as one of the administration’s “Grand Challenges,” the goal of the initiative is to bring private and public sector research together to accelerate the development and application of technology and research into the function of complex neural networks. President Obama laid the ground work for today’s announcement during his State of the Union address in January, calling for an increased investment in research to achieve “a level of research and development not seen since the height of the space race.” Continue reading →
Each year on November 14, the International Diabetes Federation sponsors World Diabetes Day to raise awareness about the global burden of the disease. Although diabetes is historically associated with more affluent countries, diabetes rates are rising around the world. In 2000, about 170 million people had diabetes. Today, WHO estimates that diabetes affects more than 346 million people and about 70% of these individuals live in low- and middle-income countries. It is important to raise awareness of this growing burden and the links between diabetes and the infectious diseases that plague the developing world.
Infectious diseases like malaria, tuberculosis and neglected tropical diseases are endemic in several developing regions and affect millions of individuals every day. Any of these diseases can be devastating on their own, but recent studies point to the additional hazards of suffering from an infectious disease and a noncommunicable disease like diabetes. For example, individuals with diabetes who contract dengue fever have a much greater risk of developing severe (and potentially fatal) symptoms. Similarly, studies at the University of Texas have shown that individuals with diabetes have an increased risk of contracting tuberculosis.
Because dual infections are a significant health concern, more research is necessary to better understand the relationship between noncommunicable and infectious disease. Future research funding for either disease could have broad and unexpected applications. For example, diabetes research could yield additional insight into severe dengue fever or tuberculosis research might advance an understanding of diabetes. On World Diabetes Day, we must not only raise awareness of global burden of diabetes, but of the need to prioritize research to combat it and related infectious diseases.
-Morgan McCloskey, global health intern