Tag Archives: African sleeping sickness
On Monday, June 17, Research!America hosted a Hill briefing, “The Role of the U.S. Government and the Case for Scaling Up Treatment and Accelerating Innovation for the World’s Most Neglected Patients.” The event was sponsored by Reps. Lucille Roybal-Allard (D-CA) and Karen Bass (D-CA) and hosted in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières (MSF).
Kaitlin Christenson of GHTC served as the event’s moderator. Other panelists included DNDi’s Rachel Cohen; Brian D’Cruz, MD, of Doctors Without Borders; and Laurence Buxbaum, MD, PhD, of the Philadelphia Research and Educational Foundation.
The event began with a video from MSF that drew attention to neglected tropical diseases (NTDs) and the world’s most neglected patients that suffer from them. A panel discussion followed and Brian D’Cruz shared his personal experiences treating patients with NTDs in rural parts of Africa. He spoke of the difficulties in using current tools to treat patients, particularly in trying to perform procedures like spinal taps in communities with no sanitation or running water systems. In addition to the logistical difficulties, some of the existing drugs can be toxic or lead to extreme side effects that discourage patients from finishing their treatments. To cure these diseases and provide the best quality of care to neglected patients, new tools must be developed. Continue reading →