Tag Archives: Alan Alda

A Weekly Advocacy Message from Mary Woolley: Finally, tax policy is on the agenda

Dear Research Advocate:

What will determine the speed and scope of medical progress in the years to come? There is more to it than the essential ingredients of money and brainpower.

Sound tax policy is essential if we are to propel medical progress.

Yesterday, Rep. Dave Camp (R-MI-04), chairman of the House Ways and Means Committee, introduced a comprehensive tax reform bill. While the prospects for passage during this election year are — to put a positive spin on it — uncertain, Congressman Camp laid down the gauntlet for much-needed tax and entitlement reform, and he also proposed making the R&D tax credit permanent. Uncertainty surrounding future access to the R&D tax credit has reduced its power to drive private sector R&D investment. While the Camp bill does not contain the ideal package of changes needed to optimize the usefulness of the credit, and in fact contains some potential setbacks, his decision to support making the R&D tax credit permanent sets the stage for finally achieving this long-standing goal.

Scientists, physicians and patients must all work to increase clinical trial participation.

In a recent Washington Post op-ed, a personal hero of mine, former Surgeon General and CDC Director David Satcher, MD, discusses the importance of African-Americans contributing to medical progress by participating in clinical research. Using Alzheimer’s disease as a lens, he argues that adequate research funding is not the only imperative; individuals must be willing to volunteer for clinical trials. Participation is especially valuable for racial and ethnic groups who have much to gain as health disparities persist, but who understandably remember mistreatment in trials in the past. Polling commissioned by Research!America has affirmed this lack of trust but also, importantly, has revealed that African-Americans in particular say they want to help others by participating in trials. We also learned from our polls that most Americans, across all demographics, look to their physicians to be the touchpoint for learning about clinical trial participation.

Improved scientist engagement with the public and policy makers is essential.

Medical research stands a better chance of becoming a higher national priority if people can connect meaningfully to scientists. As Alan Alda said at the annual AAAS meeting last week, and in an interview with Claudia Dreifus in The New York Times, “How are scientists going to get money from policy makers if our leaders and legislators can’t understand what they do?” He and his colleagues at the Alan Alda Center for Communicating Science at Stony Brook use of the some of the same approaches we do to help the science community connect with non-scientists in ways that can truly move mountains. Alda adds a passion for science with dramatic talent for a skill set we can all learn from.

Media attention — old school and new school — is key.

Both traditional and social media play a role in the fate of U.S. medical progress because of their ability to call public and policy maker attention to possibilities and stumbling blocks. Research!America and the Pancreatic Cancer Action Network hosted a media luncheon today to discuss the challenges involved in turning cancer, in all its insidious forms, into a manageable chronic condition. It was reinforced to us that journalists’ questions are good markers of questions the public in general are raising; it’s important for scientists and advocates to listen and respond. Sometimes we fall into the pattern of just repeating our own messages louder and louder, but we should instead step back and listen to the sometimes-challenging questions being raised by media as they seek to inform the public. All of us who care about the future of research for health should seek out opportunities to engage with journalists. Contact us for suggestions on how to get started!

Sincerely,

Mary Woolley

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Your Data Matters. But So Does Your Story.


A tenet of Research!America’s advocacy has always been to implore scientists to tell their stories – not their data. Stories connect with other people, i.e., non-scientists, in a way that data cannot. A hundred heartfelt words do more than 100 million data points.

We know this because people, i.e., non-scientists, have told us. They have demonstrated it to us.

Alan Alda’s improv classes at Stony Brook University turned scientists into storytellers. We’ve heard from Members of Congress that stories keep them engaged. And if that’s not enough, we have an in-person demonstration from part of the crew at the traveling show/podcast called The Story Collider.

Ben Lillie, PhD, is the co-founder and director, and Erin Barker is the senior producer for the show that brings stories of science to the public. During a recent talk at TEDMED, first noted at io9.com last week, Lillie explains the stress and anxiety of earning a doctorate in theoretical physics from Stanford University – and it’s easy to imagine that stress, right? Continue reading →