Americans Say Congress Should Take Swift Action to Assure Patients Benefit from Treatments and Cures for Diseases
New Poll Data Summary booklet reveals concerns among Americans about the pace of medical progress
Majorities across the political spectrum say it is important that the new 114th Congress takes action on assuring the discovery, development and delivery of treatments and cures for diseases in the first 100 days of the legislative session (75% Democrats, 64% Republicans and 60% Independents), according to America Speaks, Volume 15, a compilation of public opinion polls commissioned by Research!America. As Congress considers numerous proposals in support of research, including the 21st Century Cures draft legislation aimed at speeding the delivery of lifesaving treatments to patients, it is notable to see public support in favor of accelerating medical progress.
“The new Congress has the opportunity to reinvigorate our research ecosystem and enact policies that will enable the private sector to expand innovation,” said Research!America Chair John Edward Porter. “Congress must work in a bipartisan fashion to realize the potential of promising studies to prevent and treat disease.”
An increasing percentage of Americans say the U.S. Food and Drug Administration (FDA) should move more quickly in order to get new treatments to patients, even if it means there may be risks. In 2015, 38% favor faster regulatory review, compared to 30% in 2013. Meanwhile, 25% say the FDA should act more slowly in order to reduce risk, even if it means patients may wait longer for treatments. Another 19% are undecided on this question and 18% do not agree with either position. Continue reading →
The tiny increases included in the “Cromnibus” bill for the National Institutes of Health (NIH) and our nation’s other health research agencies are just that. The underwhelming support for the NIH, the Centers for Disease Control and Prevention, the National Science Foundation and the Food and Drug Administration following years of stagnant funding and budget cuts begs the question – how low can we go, given health threats the likes of which stand to bankrupt the nation? And the decision to flat-fund the Agency for Healthcare Research and Quality does not provide what it takes to reduce the much-complained of inefficiencies in our health care system. The pain and economic drain of one disease alone – Alzheimer’s – is not going to be effectively confronted without stronger investments in research. Every American who wants to see our nation overcome health threats, create jobs and shore up our economy for sustained prosperity must make it clear to the next Congress that it can and must do more, making research and innovation a strategic national priority.
World AIDS day, commemorated each year on Dec 1, aims to raise awareness about the virus, encourage advocates to redouble efforts to fight the epidemic, and remember those who have died and continue to suffer from the disease.
The 2014 World AIDS day theme “Focus, Partner, Achieve: An AIDS-free Generation,” speaks to how combined efforts and collaborations can bring us closer to a cure or vaccine. For example, public and private-sector funded research led to the development of Highly Active Antiretroviral Therapy (HAART), which revolutionized the battle against HIV/AIDS according to Research!America’s HIV/AIDS fact sheet.
Medical research has played a critical role in reducing the risk of transmission and has led to new drugs that have transformed HIV/AIDS from a fatal to a chronic illness for millions worldwide. Patients like Maria Davis, professional entertainer and HIV/AIDS advocate, has benefited from advances in HIV/AIDS treatments.
Research!America member, amfAR, The Foundation for AIDS research and The Centers for Disease Control and Prevention are raising awareness on World AIDS Day by providing up-to-date resources and information describing the human and economic impact of HIV/AIDS. In FY14, U.S. federal funding to combat HIV/AIDS here and abroad and assist those affected by the disease totaled $29.5 billion, but more resources and funding are needed to tackle this global epidemic. Tell Congress that we need more funding for HIV/AIDS research today!
To find out more about the events happening on Dec. 1, visit http://aids.gov/
In honor of Public Health Thank You Day we will be highlighting public health professionals throughout the day today. Our first professional is Sasha McGee, Ph.D., M.P.H., epidemic intelligence service officer at the Centers for Disease Control and Prevention, assigned to the District of Columbia Department of Health.
My earliest educational and research experiences were guided by my passion to pursue a career in which my work would contribute to the improvement of health. After completing my doctoral training, I knew that I did not just want to conduct research but to participate in the translation of data into interventions that would benefit large populations. The field of public health seemed to be the perfect choice in terms of having the opportunity to both investigate and address health challenges.
What do you enjoy most about your current position as an early career public health professional?
What I enjoy most about my current position is the opportunity to participate in projects on a wide range of topics — I am always learning something new and no day is ever the same. I also appreciate the collaborative nature of my work. Continue reading →
Public Health Thank You Day, November 24, 2014
ALEXANDRIA, Va.-November 20, 2014-As Thanksgiving approaches, Research!America and leading U.S. public health organizations urge Americans to salute public health professionals who go above and beyond to protect the health of our nation. Public Health Thank You Day honors all those unsung heroes who keep our drinking water safe and air clean, develop vaccines, track and investigate infections, and protect us against threats such as influenza, the Ebola and Enterovirus D68 outbreaks and natural disasters.
“Every day, public health professionals here and around the world work in challenging and sometimes dangerous situations to protect our health. The Ebola epidemic in West Africa and cases of Ebola in the U.S. are a reminder of the global nature of public health threats,” said Thomas R. Frieden, M.D., M.P.H., director of the Centers for Disease Control and Prevention (CDC). “Whether they are working to keep us safe from infectious disease threats, or finding ways to promote healthy opportunities, thanks to all the dedicated public health professionals who work to keep us safe and healthy.”
These everyday heroes include our health inspectors, environmental health scientists, laboratorians, epidemiologists, public health researchers, sanitation workers, nurses and many other dedicated workers. The CDC, local health departments and various institutions within our public health infrastructure have come together to address recent outbreaks, and public health professionals are tackling these threats head-on – as they do with other health challenges on a daily basis. Continue reading →
The Centers for Disease Control and Prevention (CDC) sent more than 50 disease detectives and other highly trained experts to West Africa to battle Ebola. While here in the U.S., more than 350 CDC staff are working on logistics, communications, analytics, management and other functions to support the response 24/7 at CDC’s Emergency Operations Center.“We are fulfilling our promise to the people of West Africa, Americans, and the world, that CDC would quickly ramp up its efforts to help bring the worst Ebola outbreak in history under control,” said CDC Director Tom Frieden, MD, MPH. “We know how to stop Ebola. It won’t be easy or fast, but working together with our U.S. and international partners and country leadership, together we are doing it.” Read more here.
Meanwhile, researchers at the National Institutes of Health (NIH) and the National Institute of Allergy and Infectious Diseases (NIAID) are studying Ebola and seeking better ways to diagnose and treat the disease. In 2013, the NIAID reported spending $42.49 million on Ebola research. Public-private partnerships are critical to containing and preventing such deadly outbreaks. The NIAID is collaborating with Okairos, a biotech company, to develop Ebola vaccines. The NIH is working with the drugmaker Mapp Biopharmaceutical to scale up production of its Ebola drug Zmapp and partnering with BioCryst to advance the company’s experimental treatments.
Sustained and robust federal funding is needed to respond to global health threats, and to support the development of vaccines to combat Ebola and other deadly diseases. Policymakers must assign a higher priority to medical research to ensure the health and wellness of Americans.
Click here to urge your representatives to support increased funding for federal health agencies in FY15.