Tag Archives: Drugs for Neglected Diseases initiative (DNDi)

Neglected Tropical Diseases: Topic of Capitol Hill Briefing/Meetings

On June 17, Research!America hosted a Capitol Hill briefing on neglected tropical diseases in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières (MSF).

Research!America also led a series of Hill meetings last week with influential congressional offices to discuss some of the successes of USAID’s NTD program and to highlight the need for continued investments. USAID’s NTD program – which was authorized by Congress in 2006 – has helped to deliver more than 580 million treatments to approximately 260 million people through mass drug administration campaigns. We were joined by Georgetown University, Baylor College of Medicine, the Global Network for NTDs, IMA World Health and the Latin America Society for Chagas (LASOCHA). The group – which represented a broad range of partners from organizations that implement USAID NTD programs to patient advocates to leading NTD expert, Dr. Peter Hotez – discussed the importance of the USAID NTD program to their work and updated staffers on emerging issues in NTD prevention and treatment. Continue reading →

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Hill Briefing on U.S. Role in Combating NTDs

Neglected tropical diseases (NTDs) are a group of 17 bacterial and parasitic infections that affect more than 1.4 billion people worldwide. NTDs are both infectious and chronic and disproportionately affect people in poverty. The U.S. has played an important role in the fight against NTDs, particularly through the NTD program at USAID. Although the program is extremely successful and has delivered treatments to more than 250 million people worldwide, currently the program only focuses on five of the seventeen NTDs. The remaining twelve are often overlooked, in part because existing tools are simply not sufficient to treat these NTDs.

To discuss these issues and more, please join us on Monday, June 17, for a Hill briefing, “The Role of the U.S. Government and the Case for Scaling Up Treatment and Accelerating Innovation for the World’s Most Neglected Patients.” Panelists will discuss methods for scaling up treatment for all NTDs in addition to exploring remaining research gaps that must be addressed. Overall, the event will highlight opportunities for future U.S. involvement in the fight against these deadly diseases, including the need for research investment to develop new tools and help the world’s most neglected patients.

The event is sponsored by Reps. Lucille Roybal-Allard (D-CA) and Karen Bass (D-CA) and hosted in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières.

Kaitlin Christenson of GHTC will serve as the event’s moderator. Other speakers include DNDi’s Rachel Cohen; Brian D’Cruz, MD, of Doctors Without Borders; and Laurence Buxbaum, MD, PhD, of the Philadelphia Research and Educational Foundation.

The program will run from 11 a.m. to 12:30 p.m. in Room 268 of the Capitol Visitor Center. To RSVP, please email Gwen Rathbun at Gwendolyn.Rathbun@dbr.com.

Research!America Hosts NTD Panel at CUGH Conference

Did you know that neglected tropical diseases such as dengue, Chagas and hookworm affect over 1.4 billion people worldwide, including individuals here in the U.S.? To discuss the global burden of NTDs and how federal funding and policy decisions impact the research and development of tools to combat these diseases around the world, Research!America will be hosting a panel at the Consortium of Universities for Global Health (CUGH) conference*. The panel, “Are NTDs a Growing Threat? Research, Access and Next Steps,” will be held on Thursday, March 14 at 1:30 p.m. at the Marriott Wardman Park Hotel.

The conversation will be moderated by Karen Goraleski, Executive Director of the American Society of Tropical Medicine and Hygiene (ASTMH) and will feature the following panelists: Rachel Cohen, Regional Executive Director of the Drugs for Neglected Diseases initiative (DNDi); Brian D’Cruz, Emergency Physician with Doctors Without Borders/Médecins Sans Frontières North America; LeAnne Fox, Medical Officer and Team Lead on NTDs at the Centers for Disease Control and Prevention (CDC); Kristy Murray, Associate Professor of Pediatrics at the National School of Tropical Medicine, Baylor College of Medicine and Mark Rosenberg, President and CEO of the Task Force for Global Health.

*Please note that attendance at the CUGH conference requires registration fees. For more information, please visit the conference website here.