Dear Research Advocate:
Myth #1: Congress doesn’t pay attention during the August recess. Not true! Many town hall meetings are planned. Since the debt ceiling and appropriations negotiations are coming up in September, the August recess is actually a very important time for advocacy. Use this month to drive the point home that medical research should not be subjected to budget cuts by attending a town hall meeting, meeting with district staff and participating in our social media campaign, #curesnotcuts. Click here for sample messages, or draw from a recent op-ed penned by The Honorable John Edward Porter, Research!America chair. The op-ed ran in several McClatchy-Tribune newspapers across the country last weekend. In it, he highlights the dangers that indiscriminate budget cuts pose to our medical and health research ecosystem.
Myth #2: It makes no difference when scientists speak out. On the contrary, one of the most effective strategies for promoting and protecting research is public engagement by scientists. It may seem like a waste of time or an unjustifiable obligation, but if scientists don’t speak up about their work, the funding that allows that work may evaporate. In a recent entry on his website, David Eagleman, a PhD researcher who recently received an award from the Society for Neuroscience, makes the case that the benefits (such as inspiring critical thinkers, stemming the flow of bad information, informing public policy and more) clearly outweigh the cost of time to engage in outreach and advocacy. For those ready to engage, some important points and valuable tips on how to communicate clearly and effectively were highlighted in yesterday’s Nature blog. Research!America Board member and AAAS CEO Alan Leshner is among the experts quoted. Continue reading →
The conclusion of “Eliminating Breast Cancer Health Disparities: Communicating to At-Risk Populations,” a white paper recently released by Friends of Cancer Research, is summed up with a quote from breast cancer survivor Rep. Debbie Wasserman Schultz (D-FL): “There have been so many advances in screening and treatment of cancer, but all of that is moot if women are not learning about their bodies, taking steps to reduce risk factors, and getting regular and appropriate screening.”
That exemplifies the key takeaway: The white paper is aimed at stakeholders from research to health care delivery, but stakeholders alone won’t be successful in achieving health equity. Patients themselves must be involved too.
The white paper includes four recommendations, with several additional bullet points within each recommendation. The recommendations include:
- Investigate disparities between women with cancer and healthy women;
- Build relationships that work directly with at-risk populations;
- Create expectations for minority participation in the scientific field;
- And use current and emerging technologies to engage a larger number of patients.
Support for the white paper was provided by The Avon Foundation for Women.
Friends of Cancer Research is a Research!America member, and FOCR’s chairperson and founder, Ellen Sigal, PhD, is a Research!America Board member.