Tag Archives: Global Health Technologies Coalition

Neglected Tropical Diseases: Topic of Capitol Hill Briefing/Meetings

On June 17, Research!America hosted a Capitol Hill briefing on neglected tropical diseases in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières (MSF).

Research!America also led a series of Hill meetings last week with influential congressional offices to discuss some of the successes of USAID’s NTD program and to highlight the need for continued investments. USAID’s NTD program – which was authorized by Congress in 2006 – has helped to deliver more than 580 million treatments to approximately 260 million people through mass drug administration campaigns. We were joined by Georgetown University, Baylor College of Medicine, the Global Network for NTDs, IMA World Health and the Latin America Society for Chagas (LASOCHA). The group – which represented a broad range of partners from organizations that implement USAID NTD programs to patient advocates to leading NTD expert, Dr. Peter Hotez – discussed the importance of the USAID NTD program to their work and updated staffers on emerging issues in NTD prevention and treatment. Continue reading →

Advertisements

Expanding U.S. Commitments to World’s Most Neglected Patients

ntd briefing 007

NTDs briefing

On Monday, June 17, Research!America hosted a Hill briefing, “The Role of the U.S. Government and the Case for Scaling Up Treatment and Accelerating Innovation for the World’s Most Neglected Patients.” The event was sponsored by Reps. Lucille Roybal-Allard (D-CA) and Karen Bass (D-CA) and hosted in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières (MSF).

Kaitlin Christenson of GHTC served as the event’s moderator. Other panelists included DNDi’s Rachel Cohen; Brian D’Cruz, MD, of Doctors Without Borders; and Laurence Buxbaum, MD, PhD, of the Philadelphia Research and Educational Foundation.

The event began with a video from MSF that drew attention to neglected tropical diseases (NTDs) and the world’s most neglected patients that suffer from them. A panel discussion followed and Brian D’Cruz shared his personal experiences treating patients with NTDs in rural parts of Africa. He spoke of the difficulties in using current tools to treat patients, particularly in trying to perform procedures like spinal taps in communities with no sanitation or running water systems. In addition to the logistical difficulties, some of the existing drugs can be toxic or lead to extreme side effects that discourage patients from finishing their treatments. To cure these diseases and provide the best quality of care to neglected patients, new tools must be developed. Continue reading →

Hill Briefing on U.S. Role in Combating NTDs

Neglected tropical diseases (NTDs) are a group of 17 bacterial and parasitic infections that affect more than 1.4 billion people worldwide. NTDs are both infectious and chronic and disproportionately affect people in poverty. The U.S. has played an important role in the fight against NTDs, particularly through the NTD program at USAID. Although the program is extremely successful and has delivered treatments to more than 250 million people worldwide, currently the program only focuses on five of the seventeen NTDs. The remaining twelve are often overlooked, in part because existing tools are simply not sufficient to treat these NTDs.

To discuss these issues and more, please join us on Monday, June 17, for a Hill briefing, “The Role of the U.S. Government and the Case for Scaling Up Treatment and Accelerating Innovation for the World’s Most Neglected Patients.” Panelists will discuss methods for scaling up treatment for all NTDs in addition to exploring remaining research gaps that must be addressed. Overall, the event will highlight opportunities for future U.S. involvement in the fight against these deadly diseases, including the need for research investment to develop new tools and help the world’s most neglected patients.

The event is sponsored by Reps. Lucille Roybal-Allard (D-CA) and Karen Bass (D-CA) and hosted in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières.

Kaitlin Christenson of GHTC will serve as the event’s moderator. Other speakers include DNDi’s Rachel Cohen; Brian D’Cruz, MD, of Doctors Without Borders; and Laurence Buxbaum, MD, PhD, of the Philadelphia Research and Educational Foundation.

The program will run from 11 a.m. to 12:30 p.m. in Room 268 of the Capitol Visitor Center. To RSVP, please email Gwen Rathbun at Gwendolyn.Rathbun@dbr.com.

GHTC Briefing Highlights Importance of Federally Funded Global Health Research

gh1

Research!America’s booth at GHTC briefing

On February 26, the Global Health Technologies Coalition held a Capitol Hill briefing, “Renewing US leadership: Policies to advance global health research.” The briefing included displays from global health nonprofits, the launch of GHTC’s fourth annual policy report as well as a panel discussion. Panelists included Dr. Lee Hall, Chief of Parasitology and International Programs at NIAID, Dr. Alan Magill, Director of Malaria at the Gates Foundation and Dr. Caroline Ryan, Deputy Coordinator for Technical Leadership at PEPFAR. Each highlighted key U.S. contributions to global health including the development of a rapid TB diagnostic, advances in HIV/AIDS treatment and delivery through PEPFAR and a new treatment for leishmaniasis developed in part by researchers at the Department of Defense.  Speakers pointed out that many of these medical breakthroughs were accomplished through leveraging U.S. government funding and working in public-private partnerships. All speakers expressed concern that cutting federal funding for global health research could jeopardize progress for these lifesaving tools.

In particular, Alan Magill warned of “breaking something that will be very difficult to put back together.” Speaker and moderator Lisa Cohen, Executive Director of the Washington Global Health Alliance, wrapped up the session citing Research!America poll data and reminding us that there is incredible support for this work – we just need to connect the dots for decision makers and funders. “78% of Americans think it is important to support global health research – we don’t think about this but when Americans are asked, it is clear that people care about these issues.”

Morgan McCloskey, global health intern