Tag Archives: Karen Bass

Expanding U.S. Commitments to World’s Most Neglected Patients

ntd briefing 007

NTDs briefing

On Monday, June 17, Research!America hosted a Hill briefing, “The Role of the U.S. Government and the Case for Scaling Up Treatment and Accelerating Innovation for the World’s Most Neglected Patients.” The event was sponsored by Reps. Lucille Roybal-Allard (D-CA) and Karen Bass (D-CA) and hosted in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières (MSF).

Kaitlin Christenson of GHTC served as the event’s moderator. Other panelists included DNDi’s Rachel Cohen; Brian D’Cruz, MD, of Doctors Without Borders; and Laurence Buxbaum, MD, PhD, of the Philadelphia Research and Educational Foundation.

The event began with a video from MSF that drew attention to neglected tropical diseases (NTDs) and the world’s most neglected patients that suffer from them. A panel discussion followed and Brian D’Cruz shared his personal experiences treating patients with NTDs in rural parts of Africa. He spoke of the difficulties in using current tools to treat patients, particularly in trying to perform procedures like spinal taps in communities with no sanitation or running water systems. In addition to the logistical difficulties, some of the existing drugs can be toxic or lead to extreme side effects that discourage patients from finishing their treatments. To cure these diseases and provide the best quality of care to neglected patients, new tools must be developed. Continue reading →

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Hill Briefing on U.S. Role in Combating NTDs

Neglected tropical diseases (NTDs) are a group of 17 bacterial and parasitic infections that affect more than 1.4 billion people worldwide. NTDs are both infectious and chronic and disproportionately affect people in poverty. The U.S. has played an important role in the fight against NTDs, particularly through the NTD program at USAID. Although the program is extremely successful and has delivered treatments to more than 250 million people worldwide, currently the program only focuses on five of the seventeen NTDs. The remaining twelve are often overlooked, in part because existing tools are simply not sufficient to treat these NTDs.

To discuss these issues and more, please join us on Monday, June 17, for a Hill briefing, “The Role of the U.S. Government and the Case for Scaling Up Treatment and Accelerating Innovation for the World’s Most Neglected Patients.” Panelists will discuss methods for scaling up treatment for all NTDs in addition to exploring remaining research gaps that must be addressed. Overall, the event will highlight opportunities for future U.S. involvement in the fight against these deadly diseases, including the need for research investment to develop new tools and help the world’s most neglected patients.

The event is sponsored by Reps. Lucille Roybal-Allard (D-CA) and Karen Bass (D-CA) and hosted in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières.

Kaitlin Christenson of GHTC will serve as the event’s moderator. Other speakers include DNDi’s Rachel Cohen; Brian D’Cruz, MD, of Doctors Without Borders; and Laurence Buxbaum, MD, PhD, of the Philadelphia Research and Educational Foundation.

The program will run from 11 a.m. to 12:30 p.m. in Room 268 of the Capitol Visitor Center. To RSVP, please email Gwen Rathbun at Gwendolyn.Rathbun@dbr.com.