Tag Archives: PAN

Member Spotlight: Parkinson’s Action Network

The genesis of the Parkinson’s Action Network goes back to 1987, four years before the organization’s founding. That year, Joan Samuelson left a career in law after being diagnosed with Parkinson’s disease; she threw her might into advocating for people living with Parkinson’s. Four years later, PAN was born, and its successful advocacy continues today.

Parkinson’s Action Network

The Parkinson’s Action Network (PAN) is a unique organization in the patient advocacy world. PAN represents the entire Parkinson’s community on funding and quality of life policy priorities for those living with the disease. PAN works with other national Parkinson’s organizations and is the only organization addressing government programs and policies that impact the Parkinson’s community.

“We’ve worked on a vision that if our community came together on policy issues, with one, singular voice, we would be much more effective,” said PAN CEO Amy Comstock Rick, JD, who became a Research!America Board member in March. “Really in the last 10 years, we’ve been able to effectively achieve that mission so that PAN is the only organization in the Parkinson’s community that works on policy issues, even though we have a number of national organizations.” Continue reading →

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