Tag Archives: Pancreatic Cancer Action Network

A Weekly Advocacy Message from Mary Woolley: Finally, tax policy is on the agenda

Dear Research Advocate:

What will determine the speed and scope of medical progress in the years to come? There is more to it than the essential ingredients of money and brainpower.

Sound tax policy is essential if we are to propel medical progress.

Yesterday, Rep. Dave Camp (R-MI-04), chairman of the House Ways and Means Committee, introduced a comprehensive tax reform bill. While the prospects for passage during this election year are — to put a positive spin on it — uncertain, Congressman Camp laid down the gauntlet for much-needed tax and entitlement reform, and he also proposed making the R&D tax credit permanent. Uncertainty surrounding future access to the R&D tax credit has reduced its power to drive private sector R&D investment. While the Camp bill does not contain the ideal package of changes needed to optimize the usefulness of the credit, and in fact contains some potential setbacks, his decision to support making the R&D tax credit permanent sets the stage for finally achieving this long-standing goal.

Scientists, physicians and patients must all work to increase clinical trial participation.

In a recent Washington Post op-ed, a personal hero of mine, former Surgeon General and CDC Director David Satcher, MD, discusses the importance of African-Americans contributing to medical progress by participating in clinical research. Using Alzheimer’s disease as a lens, he argues that adequate research funding is not the only imperative; individuals must be willing to volunteer for clinical trials. Participation is especially valuable for racial and ethnic groups who have much to gain as health disparities persist, but who understandably remember mistreatment in trials in the past. Polling commissioned by Research!America has affirmed this lack of trust but also, importantly, has revealed that African-Americans in particular say they want to help others by participating in trials. We also learned from our polls that most Americans, across all demographics, look to their physicians to be the touchpoint for learning about clinical trial participation.

Improved scientist engagement with the public and policy makers is essential.

Medical research stands a better chance of becoming a higher national priority if people can connect meaningfully to scientists. As Alan Alda said at the annual AAAS meeting last week, and in an interview with Claudia Dreifus in The New York Times, “How are scientists going to get money from policy makers if our leaders and legislators can’t understand what they do?” He and his colleagues at the Alan Alda Center for Communicating Science at Stony Brook use of the some of the same approaches we do to help the science community connect with non-scientists in ways that can truly move mountains. Alda adds a passion for science with dramatic talent for a skill set we can all learn from.

Media attention — old school and new school — is key.

Both traditional and social media play a role in the fate of U.S. medical progress because of their ability to call public and policy maker attention to possibilities and stumbling blocks. Research!America and the Pancreatic Cancer Action Network hosted a media luncheon today to discuss the challenges involved in turning cancer, in all its insidious forms, into a manageable chronic condition. It was reinforced to us that journalists’ questions are good markers of questions the public in general are raising; it’s important for scientists and advocates to listen and respond. Sometimes we fall into the pattern of just repeating our own messages louder and louder, but we should instead step back and listen to the sometimes-challenging questions being raised by media as they seek to inform the public. All of us who care about the future of research for health should seek out opportunities to engage with journalists. Contact us for suggestions on how to get started!

Sincerely,

Mary Woolley

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Research!America and the Pancreatic Cancer Action Network Host Panel Discussion – “A World Free from Cancers: Probable, Possible, or Preposterous?”

  Leading Experts Focus on the Challenges and Opportunities Affecting the Fight Against Cancer

ALEXANDRIA, Va. – February 27, 2014 A panel of leading health, economics and policy experts today discussed the prospects for a future where cancers are rendered manageable or even eradicated and the variables affecting progress toward that goal so that cancer patients are able to lead normal, productive lives – and thus be “free from” their cancers. The forum was hosted by Research!America and the Pancreatic Cancer Action Network. The event, titled, “A World Free from Cancers: Probable, Possible, or Preposterous?” was held at the New York Academy of Sciences.

Medical innovation has contributed to the economic success of the U.S. over the last 50 years and it offers enormous potential to make a meaningful difference in the quality and length of our lives in the next 50 years. Of all the critical trends that will create a prosperous future, the panelists believe that medical innovation will be the most important. In order to achieve a culture of change where science and medicine will be part of the solution, all stakeholders must stand up and advocate for pro-patient and pro-innovation policies and laws. By supporting a positive regulatory and legislative environment and working toward innovative solutions for complex health care challenges, policy makers can help combat devastating diseases like cancers.

“While medical innovation has driven extraordinary progress against cancer in the U.S. and peer nations, we know that globally, cancer cases and death rates are rising. And even in the U.S., the incidence of some cancers, including pancreatic cancer, is rising,” said Mary Woolley, president and CEO, Research!America. “We need to work together to address these alarming trends, and commit to overcoming the barriers to achieving a world free from cancers. Ensuring that U.S. policy makers sustain a policy environment conducive to rapid-pace medical innovation is crucial.”

The panel addressed the role of medical innovation, not only in the fight against cancer, but as a major force in our nation’s economic progress. Among the technological advances of the 21st century, medical innovation has been the biggest factor in improving the lives of patients, benefiting the health care system and improving prosperity. Over the past 50 years, medical innovation has been the source of more than half of all economic growth in the United States.

The panel, moderated by Fox News Channel’s Jim Pinkerton, featured several leading figures in the cancer and health care community, including:

  • Clifton Leaf, journalist and author, “The Truth in Small Doses: Why We’re Losing the War on Cancer-and How to Win It”
  • Julie Fleshman, president and CEO, Pancreatic Cancer Action Network
  • Laurie MacCaskill, seven-year pancreatic cancer survivor and chair, national Board of Directors, Pancreatic Cancer Action Network
  • Amy Abernethy, MD, PhD, director, Duke Center for Learning Health Care
  • Robert J. Hariri, MD, PhD, chairman, founder and chief scientific officer, Celgene Cellular Therapeutics
  • Scott Gottlieb, MD, resident fellow, American Enterprise Institute
  • Frank Lichtenberg, PhD, Courtney C. Brown Professor of Business, Columbia University

“Although medical innovation has played a key role in the fight against cancer and improving the overall cancer survival rate, much work lies ahead especially for deadly cancers such as pancreatic cancer where the five-year survival rate is just 6%,” said Julie Fleshman, president and CEO, Pancreatic Cancer Action Network. “In order to move towards a world free from cancers, the cancer infrastructure has to continue to keep up with the advances in science and our nation needs to make medical research a priority.”

The panel discussed the benefits of past breakthroughs for some types of cancer: there have been an estimated 50 million life-years saved and $4.9 trillion added in economic value due to innovative cancer treatments since 1990. However, further success in reducing the devastating impacts of cancers and accelerating medical innovation is dependent on developing effective collaborative solutions from an “ecosystem of innovation” – bringing together scientists, patients, health care providers, private-sector medical innovators, academia, payers and policy makers – to find solutions that will save lives from all types of cancers.

“We have made great progress since 1971, when President Nixon declared the war on cancer, in terms of understanding the epidemiology of the disease, improving diagnoses, discovering new treatment paradigms and novel therapeutic approaches to better manage cancers,” said Robert Hariri, MD, PhD, chairman, founder and chief scientific officer, Celgene Cellular Therapeutics. “But the progress we’ve made is not enough. We need to continue the momentum we have started and work together to change the course of human health for patients, health care, our economy and future generations.”

About Research!America

Research!America is the nation’s largest nonprofit public education and advocacy alliance working to make research to improve health a higher national priority. Founded in 1989, Research!America is supported by member organizations representing 125 million Americans. Visit www.researchamerica.org.

About the Pancreatic Cancer Action Network

The Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization is leading the way to change the survival for people diagnosed with this devastating disease through a bold initiative — The Vision of Progress: Double Survival for Pancreatic Cancer Survival by 2020. Together, we can know, fight and end pancreatic cancer by intensifying our efforts to heighten awareness, raise funds for comprehensive private research, and advocate for dedicated federal research to advance early diagnostics, better treatments and increase chances of survival. To learn more, visit www.pancan.org.