Americans Say Congress Should Take Swift Action to Assure Patients Benefit from Treatments and Cures for Diseases
New Poll Data Summary booklet reveals concerns among Americans about the pace of medical progress
Majorities across the political spectrum say it is important that the new 114th Congress takes action on assuring the discovery, development and delivery of treatments and cures for diseases in the first 100 days of the legislative session (75% Democrats, 64% Republicans and 60% Independents), according to America Speaks, Volume 15, a compilation of public opinion polls commissioned by Research!America. As Congress considers numerous proposals in support of research, including the 21st Century Cures draft legislation aimed at speeding the delivery of lifesaving treatments to patients, it is notable to see public support in favor of accelerating medical progress.
“The new Congress has the opportunity to reinvigorate our research ecosystem and enact policies that will enable the private sector to expand innovation,” said Research!America Chair John Edward Porter. “Congress must work in a bipartisan fashion to realize the potential of promising studies to prevent and treat disease.”
An increasing percentage of Americans say the U.S. Food and Drug Administration (FDA) should move more quickly in order to get new treatments to patients, even if it means there may be risks. In 2015, 38% favor faster regulatory review, compared to 30% in 2013. Meanwhile, 25% say the FDA should act more slowly in order to reduce risk, even if it means patients may wait longer for treatments. Another 19% are undecided on this question and 18% do not agree with either position. Continue reading →
A Weekly Advocacy Message from Mary Woolley: What about the wave of science doubt?
Dear Research Advocate:
The cover story of this month’s National Geographic describes the recent wave of science doubt as a “pop culture meme,” featuring in-the-news examples like climate change and vaccines, and discussion of tough challenges like replicability of research, scientific literacy (of note: increased science literacy has been shown to lead to increased polarization of opinion about science), and what is meant, anyway, by effective “science communication”? The article doesn’t mention what I often call the “invisibility” problem (see, for example, data showing low percentages of Americans who can name a living scientist), but that topic was addressed directly and indirectly in several sessions at last week’s annual meeting of the American Association for the Advancement of Science (AAAS).
Data from a Pew Research poll of AAAS members show that a majority of scientists now believe that it is important to engage with the public, with a high percentage saying they do so regularly. That is welcome news. Another AAAS session brought out the importance of the quality of that engagement, exploring connecting with non-scientists in ways that is positive for both scientist and non-scientist. And, Professor Susan Fiske of Princeton spoke to an overflow crowd in her featured session about work showing that all of us – people in general – for better or worse, and with consequences to match – make quick judgments about others’ intent and their degree of competency. (Perception of competency + perception of good intent = trust.) Fiske noted that politicians are almost never trusted, although they are sometimes viewed as competent. Scientists are mostly considered competent, but they are also considered to be cold, a judgment that can throw their intentions into question. Fiske said that it is possible to change perceptions about scientists if they convey warmth and motivation to cooperate, showing ‘worthy intent.’ (If you have followed Research!America’s work in communicating to the non-science trained public, you know that we advocate saying and conveying, “I work for you.” That advice fits right in here.) Continue reading →
Hispanic Heritage Month: The Changing Face of Health Care
By Israel Rocha, CEO, Doctors Hospital at Renaissance
September 15 marks the beginning of Hispanic Heritage Month, a time to pay tribute to the generations of Hispanics who have enriched America’s history. It’s also an important time to consider how this community can be further empowered to make important contributions, particularly in the future of health care.
Research demonstrates that certain diseases disproportionately impact the Hispanic community, including diabetes, liver cancer, cervical cancer and HIV/AIDS. Clinical trials help researchers find better ways to diagnose, prevent and treat these diseases and others. However, Hispanics are significantly underrepresented in clinical trials. Despite representing 16 percent of the U.S. population, Hispanics comprise only 1 percent of clinical trial participants.
Given this historic underrepresentation, there is tremendous opportunity to boost clinical trial participation within diverse patient populations. According to a July 2013 study by Research!America:
- More than 40 percent of Hispanics greatly admire clinical trial participants.
- More than 2/3 of Hispanics would be willing to share health information to help researchers find better ways to prevent and treat disease.
- Nearly half of the Hispanics polled rate a physician’s recommendation to participate in a clinical trial as very important.
Opinion: Who We Work For
Op-ed by Research!America President and CEO Mary Woolley published in The Scientist.
On winning hearts, minds, and votes for science
In chartering the National Academy of Sciences 150 years ago, President Abraham Lincoln had the wisdom to establish a body that would provide scientific advice to the nation. Lincoln also had the wisdom to know that science doesn’t advance in a vacuum; he knew that there are political frames for science, which must serve—and be perceived to serve—the public’s interest. “Public sentiment is everything,” he said in 1858. “Without it, nothing can succeed; with it, nothing can fail.”
Public opinion polls document strong support for scientific research, including for basic research, but few Americans can name a living scientist or a place where research is conducted. Researchers, with careers on the line, can and must do a better job of articulating the value of science, because the virtual invisibility of our enterprise is not destined to activate general sentiment in our favor.
It’s tempting to think that biomedical science has “won” the hearts of the public, but that would be wrong. To say we have won the hearts of the public would be to imply that we have worked at it. In fact, researchers rarely work to win the hearts and minds of the public, rarely demonstrate accountability to the public in ways non-scientists can understand, and rarely talk about how science affects the quality of life of all Americans. To the contrary, researchers rely too much on the assumption of unspoken alignment, and—what’s worse—when questions arise, are quick to marginalize and malign those who don’t immediately agree. And even if we stipulate that we have mostly “won the hearts” of the public, it’s pretty clear that we haven’t won the minds of those who are making decisions about the future of the scientific enterprise in this country. And win votes we must if we are to assure that American preeminence in science continues. The challenge of winning hearts, minds, and votes is a collective task, and it is high time we embrace it. Continue reading →
Don lab coats
Letter to the editor by Research!America President and CEO Mary Woolley published in the Philadelphia Inquirer.
By visiting a University of Pennsylvania research facility last week, Sen. Bob Casey (D., Pa.) underscored his commitment to making research and innovation an immutable national priority (“Scientists reeling from budget cuts,” Oct. 24). Adequately supported, research will allow us to overcome major health threats and drive the economy.
Americans have taken notice that research support is waning and, in addition, say they are concerned that officials in Washington are not paying enough attention to deadly diseases, polling done for our nonprofit advocacy alliance, Research!America, shows. If elected officials aren’t paying attention, who will lead the charge to assure robust funding for research now and in the future? Too many lives hang in the balance if we take medical progress for granted. Cures and treatments for deadly and disabling diseases can’t wait out nine more years of sequestration.
Research Australia 2013 national public opinion poll
Research Australia has released its 2013 public opinion poll which reveals strong support for funding health and medical research. The findings provide an interesting backdrop for the country’s parliamentary elections this year. Research Australia asked respondents their views on what priorities the Federal Government should be focusing on over the next 2 – 3 years. Three significant health issues ranked high in the results: improving the hospital and healthcare systems, more funding for health and medical research and increasing funding and programs for preventative healthcare. Australians value a wide range of research, from basic research resulting in new discoveries, to translational research, which turns new discoveries into treatments, devices, policies and new practices. In fact, 59% of Australians see health and medical research as part of the solution to rising health care costs compared to 83% of Americans who believe medical research is important to reducing health care costs in a December 2012 poll commissioned by Research!America. Most of the findings in the Research Australia poll are consistent with the opinions of Americans regarding the importance of health and medical research in improving the health care system, addressing health and economic challenges and sharing personal health data. Nearly 80% of Australians said they’re willing to share their personal health records for research purposes while 66% of Americans said they were willing to do so in the December Research!America poll. But the percentage rose in a May 2013 poll – 73% of Americans said they’re willing to share personal health information to advance research assuming appropriate privacy protections are in place. Read more of Research Australia’s public opinion poll here. Continue reading →
