Tag Archives: Richard Besser
Join NORD in Supporting Rare Disease Day!
Guest blog post by the National Organization for Rare Disorders.
February 28 is Rare Disease Day – a time to show support for the 30 million Americans, and millions more around the world, living with rare diseases.
Only a few hundred of the nearly 7,000 rare diseases have approved therapies. Many are not being studied at all by medical researchers.
Often, patients – or parents of patients – feel that nothing will be done unless they raise the money, recruit the researchers and fuel the search for their own lifesaving treatment. They find themselves in a race against time, since rare diseases tend to be serious and many are life-threatening.
To promote awareness of these and other rare disease challenges, the National Organization for Rare Disorders (NORD) hosts a national website where all patient advocates can find ways to show their support for Rare Disease Day. Continue reading →